On March 18, 2005, Ismael Vega was born at Stony Brook University Medical Center, tipping the scales at a healthy 6.9 pounds and was 17 inches long. Five months later, biopsy results uncovered a brutal reality.
For the rest of his life, Ismael will suffer from osteogenesis imperfecta, or OI, a rare genetic disorder characterized by fragile bones that break easily—also known as “brittle bone disease”—that affects between 25,000 and 50,000 Americans.
“No cure. No hopes. No future,” Ms. Vega said. “That’s what the doctors said.”
They were only partially correct.
While there is still no cure, doctors never predicted that Ismael’s... more