Five months into Patricia Vega’s pregnancy, doctors told the Hampton Bays resident that something was wrong. Her baby’s limbs were growing slower than his head and body, but doctors could not explain why.
On March 18, 2005, Ismael Vega was born at Stony Brook University Medical Center, tipping the scales at a healthy 6.9 pounds and was 17 inches long. Five months later, biopsy results uncovered a brutal reality.
For the rest of his life, Ismael will suffer from osteogenesis imperfecta, or OI, a rare genetic disorder characterized by fragile bones that break easily—also known as “brittle bone disease”—that affects between 25,000 and 50,000 Americans.
“No cure. No hopes. No future,” Ms. Vega said. “That’s what the doctors said.”
They were only partially correct.
While there is still no cure, doctors never predicted that Ismael’s... more
On March 18, 2005, Ismael Vega was born at Stony Brook University Medical Center, tipping the scales at a healthy 6.9 pounds and was 17 inches long. Five months later, biopsy results uncovered a brutal reality.
For the rest of his life, Ismael will suffer from osteogenesis imperfecta, or OI, a rare genetic disorder characterized by fragile bones that break easily—also known as “brittle bone disease”—that affects between 25,000 and 50,000 Americans.
“No cure. No hopes. No future,” Ms. Vega said. “That’s what the doctors said.”
They were only partially correct.
While there is still no cure, doctors never predicted that Ismael’s... more
I know I don't have to tell you this, but don't give up, don't quit, and never, ever stop.
They say it's always darkest before the dawn, but if you shine your own light, even the gloomiest of places will never be completely dark. You seem to understand that naturally. You've been blessed with a great spirit, and with people who love you very much. That's a very special thing in this world.
It's things like, faith, hope, and love, that are more important ...more than anything.
Love, is the strongest of the three. It's the strongest force in ths Universe, even more powerful than gravtiy, but unfortunately for us all, much rarer in Nature.