At the age of 4, Water Mill’s Rowland Egerton-Warburton became one of just 54 people in the world diagnosed with a rare neurodevelopmental genetic disorder. ADNP (Activity-Dependent Neuroprotective Protein) syndrome is a form of autism that can cause problems with neurological, cardiovascular, endocrine, immune, musculoskeletal and gastrointestinal systems. Rowland, now 10, is nonverbal and receives interventional services while his mother, Genie Egerton-Warburton, has become her son’s biggest champion. April is Autism Awareness Month and as vice president of ADNP Kids Research Foundation, Genie joins the editors on 27Speaks this week to talk about her son’s condition and the importance of education and honest communication when it comes to addressing all forms of autism.
Subscribe to 27Speaks on Apple Podcasts, Google Podcasts, Amazon Music and Spotify.